London. In Britain, the world’s most expensive injection will be given to a child of just 8 weeks i.e. two months. The cost of this injection is 16 crores. As soon as you read the headline of this news that an eight-week baby (Injection of Sixteen Crore Rupees) is to be injected, then it is inevitable that the question will arise in your mind. What is the problem? Let me tell you that the child has a disease called genetic spinal muscular atrophy. The eight-week-old baby born in Britain is named Edward. To relieve Edward from this disease, a 1.7 million pound or 16 million rupees will be injected.
Know, what is SMA disease?
Genetic spinal muscular atrophy, ie SMA, occurs due to lack of SMN-1 gene in the body. This causes the muscles of the chest to become weak and difficulty in breathing. This disease happens only to children and later the problem starts increasing and the patient dies. The disease is more prevalent in Britain and about 60 children are born there every year.
There was no cure for
this disease three years ago, there was no cure for this disease until three years ago. The disease is repaired with three types of gene therapy – Zolgensma (Rs 16 crore), Glibera therapy (Rs 7.3 crore) and Laxturna injection (Rs 6 crore). Permission to use Zoologensma therapy has been given in Europe. The company making it says that it is a rare disease and for its treatment, this medicine is given to the patient only once and it is very expensive. In 2017, after much research and testing, it was successful and injection production was started. In 2017, 15 children were given this medicine, after which all survived for more than 20 weeks.
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60 children are born with SMA disease every year in the UK
More children are suffering from this disease in Britain, but its medicine is not made there. The name of this injection is Zolgensma. In Britain, this injection is sourced from the US, Germany and Japan for treatment. This injection is given only once to a patient suffering from the disease, which is why it is so expensive because zolagenesma is one of the three gene therapies that have been allowed to be used in Europe.
Edward’s parents have started a campaign to raise money for their child’s treatment through crowd funding and have received Rs 1.17 crore as help so far. He said that for him, life is more valuable than money. Edward’s parents John Hall and Megan Willis, who live in Sussex, say they will do everything possible to save their child’s life. At the same time, mother Megan says that injection is very expensive, but research results show that it is also very effective and it has increased the lifespan of many children.
